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VIDEO. Parents are sick, and Oscar (8) and the fear of reverse Pia effect: the Therapy threatens to be prohibitively expensive to be used

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Hasselt

“The text message to the Baby Movements, it is extremely detrimental to the future of our son.” That is to say, the parents of an 8-year-old Oskar from the Square. Oskar suffers from a rare and dangerous metabolic disorder.

Just as the baby’s Movements is to use gene therapy to give him the one and only solution. The parents of the Movements of 1.9 million euros was drawn out, and thus, the drug is able to pay the fine, as they say in the casino, but they are afraid, therefore, that the gene therapy is prohibitively expensive, and the reimbursement of these drugs will be impossible.

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