Céline Dion Opens Up About Singing with Stiff Person Syndrome: EXCLUSIVE Interview

Céline Dion recently spoke out about her battle with stiff person syndrome and how it has impacted her singing ability. In a candid interview with Hoda Kotb, the Canadian music icon revealed the challenges she faces when trying to perform with the rare neurological condition.

Describing the sensation as feeling like “somebody is strangling you,” Dion explained how the disorder affects her larynx and pharynx, making it difficult to hit high or low notes without experiencing muscle spasms. She first disclosed her diagnosis in 2022 and shared that the symptoms began during her tour in 2008.

The stiffness in her torso and limbs, along with intense muscle spasms, have forced Dion to undergo therapy five days a week to manage the condition. The singer also revealed that the spasms have been so severe that they have led to broken ribs in the past.

Due to the impact of stiff person syndrome, Dion was forced to cancel her Las Vegas residency and her Courage World Tour. She remains uncertain about her future in music, expressing doubts about her ability to perform again.

Despite the challenges she faces, Dion remains resilient and is set to share her journey in the upcoming documentary “I Am: Celine Dion,” which will premiere on Amazon Prime Video. Fans can also catch her full interview with Hoda Kotb on June 11 at 10 p.m. ET on NBC.

Scott Stump, a trending reporter and writer for TODAY, has been following Dion’s story closely and providing updates on her health and career. Subscribe to the This is TODAY newsletter for more news on entertainment, health, parenting, and more.