Céline Dion Opens Up About Sharing Stiff-Person Syndrome Diagnosis

Céline Dion recently revealed the reason behind her decision to share her diagnosis of stiff-person syndrome. The music legend explained that she initially kept quiet about her health troubles as she was still trying to understand what was happening.

During an interview with Hoda Kotb on the Today show, Dion expressed her struggle with the rare neurological disorder, which causes debilitating muscle spasms. She first experienced symptoms of the condition during her Taking Chances World Tour in 2008 but only made her diagnosis public in December 2022.

Dion shared that she felt the need to be honest about her condition as the burden of lying became too much. She also discussed the impact the disorder had on her voice, describing it as feeling like someone is strangling her and causing her larynx/pharynx to be pushed.

The singer highlighted the stiffness and cramping associated with the syndrome, noting that it can sometimes feel like her body is locked into position. Despite the challenges, Dion is determined to overcome her health struggles and return to the stage.

The interview with Céline Dion will air on June 11, providing insights into her journey with stiff-person syndrome. Additionally, a Prime Video documentary, “I Am: Céline Dion,” will premiere on June 25, showcasing her fight to reclaim her health and passion for performing.